Cover image for The 36-hour day : a family guide to caring for people who have Alzheimer disease and other dementias
The 36-hour day : a family guide to caring for people who have Alzheimer disease and other dementias
Title:
The 36-hour day : a family guide to caring for people who have Alzheimer disease and other dementias
Author:
Mace, Nancy L., author.
ISBN:
9781421441702

9781421441719
Personal Author:
Edition:
7th edition.
Publication Information:
Baltimore : Johns Hopkins University Press, 2021.

©2021
Physical Description:
xv, 341 pages ; 24 cm.
Series:
A Johns Hopkins Press health book

Johns Hopkins Press health book.
General Note:
Includes index.
Contents:
1. Dementia -- What is dementia? -- The person who has dementia -- Where do you go from here? -- 2. Getting medical help for the person who has dementia -- Evaluation of the person with a suspected dementia -- Finding someone to do an evaluation -- The medical treatment and management of dementia -- The physician -- The nurse -- The social worker -- The geriatric care manager -- The pharmacist -- 3. Characteristic behavioral symptoms in people who have dementia -- The brain, behavior, and personality : why people who have dementia do the things they do -- Caregiving: some general suggestions -- Memory problems -- Overreacting, or catastrophic reactions -- Combativeness -- Problems with speech and communication -- Problems the person who has dementia experiences in making himself understood -- Problems the person who has dementia experiences in understanding others -- Loss of coordination -- Loss of sense of time -- Symptoms that are better sometimes and worse at other times -- 4. Problems in independent living -- Mild cognitive impairment -- Managing the early stages of dementia -- When a person must give up a job -- When a person can no longer manage money -- When a person can no longer drive safely -- When a person can no longer live alone -- When you suspect that someone living alone is developing dementia -- What you can do -- Moving to a new residence -- 5. Problems arising in daily care -- Hazards to watch for -- In the house -- Outdoors -- Riding in the car -- Highways and parking lots -- Smoking -- Hunting -- Nutrition and mealtimes -- Meal preparation -- Mealtimes -- Problem eating behaviors -- Malnutrition -- Weight loss -- Choking -- When to consider tube feeding -- Exercise -- Recreation -- Personal hygiene -- Bathing -- Locating care supplies -- Dressing -- Grooming -- Oral hygiene -- Incontinence (wetting or soiling) -- Urinary incontinence -- Bowel incontinence -- Cleaning up -- Problems with walking and balance; Falling -- Becoming chairbound or bedfast -- Wheelchairs -- Changes you can make at home -- Should environments be cluttered or bare? -- 6. Medical problems -- Pain -- Falls and injuries -- Pressure sores -- Dehydration -- Pneumonia -- Constipation -- Medications -- Dental problems -- Vision problems -- Hearing problems -- Dizziness -- Visiting the doctor -- If the ill person must enter the hospital -- Seizures, fits, or convulsions -- Jerking movements (myoclonus) -- The death of the person who has dementia -- Cause of death -- Dying at home -- Hospice and palliative care -- Dying in the hospital or nursing home -- When should treatment end? -- What kind of care can be given at the end of life? -- 7. Managing the behavioral and neuropsychiatric symptoms of dementia -- The six R's of behavior management -- Concealing memory loss -- Wandering -- Why people wander -- The management of wandering -- Sleep disturbances and night wandering -- Worsening in the evening ("Sundowning") -- Losing, hoarding, or hiding things -- Rummaging in drawers and closets -- Inappropriate sexual behavior -- Repeating the question -- Repetitious actions -- Distractability -- Clinging or persistently following you around ("Shadowing") -- Complaints or insults -- Taking things -- Forgetting telephone calls -- Demands -- Stubbornness and uncooperativeness -- When the person who has dementia insults the sitter -- Using medication to manage behavior -- 8. Symptoms associated with mood change and suspiciousness -- Depression -- Complaints about health -- Suicide -- Alcohol or drug abuse -- Apathy and listlessness -- Remembering feelings -- Anger and irritability -- Anxiety, nervousness, and restlessness -- False ideas, suspiciousness, paranoia, and hallucinations -- Misinterpretation -- Failure to recognize people or things (agnosia) -- "You are not my husband" -- "My mother is coming for me" -- Suspiciousness -- Hiding things -- Delusions and hallucinations -- Having nothing to do -- 9. Special arrangements if you become ill -- In the event of your death.

10. Getting outside help -- Help from friends and neighbors -- Finding information and services -- Kinds of services -- Having someone come into your home -- Adult day care -- Short-stay residential care -- Planning in advance for home care, day care, and respite care -- When the person who has dementia rejects the care -- Your own feelings about getting respite for yourself -- Locating resources -- Paying for care -- Should respite programs mix people who have different problems? -- Determining the quality of services -- Research and demonstration programs -- 11. You and the person who has dementia -- Changes in roles -- Understanding family conflicts -- Division of responsibility -- Your marriage -- Coping with role changes and family conflict -- A family conference -- When you live out of town -- When you are not the primary caregiver, what can you do to help? -- Caregiving and your job -- Your children -- Teenagers -- 12. How caring for a person who has dementia affects you -- Emotional reactions -- Anger -- Embarrassment -- Helplessness -- Guilt -- Laughter, love, and joy -- Grief -- Depression -- Isolation and feeling alone -- Worry -- Being hopeful and being realistic -- Mistreating the person who has dementia -- Physical reactions -- Fatigue -- Illness -- Sexuality -- If your spouse has dementia -- If your impaired parent lives with you -- The future -- You as a spouse alone -- When the person you have cared for dies -- 13. Caring for yourself -- Take time out -- Give yourself a present -- Friends -- Avoid isolation -- Find additional help if you need it -- Recognize the warning signs -- Counseling -- Joining with other families : the Alzheimer's Association -- Support groups -- Excuses -- Advocacy -- 14. For children and teenagers -- 15. Financial and legal issues -- Your financial assessment -- Potential expenses -- Potential resources -- Where to look for the forgetful person's resources -- Legal matters -- 16. Long-term care arrangements -- Types of living arrangements -- Moving with the person who has dementia -- Nursing homes -- Finding a long-term care setting outside the home -- Paying for care -- Guidelines for selecting a long-term care facility -- Moving a person to a residential care facility -- Adjusting to a new life -- Visiting -- Your own adjustment -- When problems occur in the nursing home or other residential care facility -- Sexual issues in nursing homes or other care facilities -- 17. Preventing and delaying cognitive decline -- Usual age-associated changes -- Risk factors identify potential targets and possible approaches for decreasing the risk of dementia -- Cardiovascular factors -- Physical exercise -- Social and intellectual activity -- Diet -- Education -- Diabetes -- Depression -- Toxins -- Head injury -- Age -- Genetics -- Medications -- 18. Brain disorders and the causes of dementia -- Mild cognitive impairment -- Dementia -- Alcohol Use Disorder Associated Dementia -- Alzheimer Disease -- Amnestic (Korsakoff) Syndrome -- Cortico-basal Ganglionic Degeneration -- Depression -- The frontotemporal dementias -- HIV-AIDS --Lewy Body Dementia -- Parkinson Disease Associated Dementia -- Primary Progressive Aphasia -- Progressive Supranuclear Palsy -- Traumatic brain injury (TBI or head trauma) -- Vascular dementia -- Young or early onset dementia -- Other brain disorders -- Delirium -- Stroke and other localized brain injury -- Transient ischemic attack -- 19. Research in dementia -- Bogus cures -- Research in vascular dementia and stroke -- Research in Alzheimer Disease -- Structural changes in the brain -- Brain cells -- Neuroplasticity -- Neurotransmitters -- Abnormal proteins -- Abnormal proteins within brain cells -- Infection -- Nerve growth factors -- Transplants of brain tissue -- Metals -- Prions -- Immunological defects -- Head trauma -- Drug studies -- Epidemiology -- Down Syndrome -- Old age -- Heredity -- Gender -- Neuropsychological testing -- Brain imaging -- Keeping active -- Effect of acute illness on dementia -- Research into the delivery of services -- Protective factors -- One disease or many?
Abstract:
When someone in your family suffers from Alzheimer disease or other related memory loss diseases, both you and your loved one face immense challenges. Mace and Robins provide practical and specific advice to make care easier, improve quality of life, and lift the spirits of a family dealing with Alzheimer disease.

"Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on: devices to make life simpler and safer for people who have dementia; strategies for delaying behavioral and neuropsychiatric symptoms; changes in Medicare and other health care insurance laws; palliative care, hospice care, durable power of attorney, and guardianship; dementia due to traumatic brain injury; choosing a residential care facility; [and] support groups for caregivers, friends, and family members. The central idea underlying the book--that much can be done to improve the lives of people with dementia and of those caring for them--remains the same. The 36-Hour Day is the definitive dementia care guide."--Publisher's description
Added Author:
Document ID:
SD_ILS:2391386
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